First, I have to say that I am thankful for WAGR/11p Deletion Syndrome, and all our WAGR families around the globe. Certainly, when we, the Heftys, are
|Girls Night Out as WAGR Weekend|
in the midst of pain and heart-ache, the syndrome does not seem like a blessing; but God holds up his end of the bargain when he says that he will work all things for our good, according to his will. Ten years ago, I could never have imagined saying, "I'm blessed to have a daughter with WAGR/11p Deletion Syndrome." Heck, I don't think I could have said it five years ago! But, within the last two years or so, I realize that I have gotten more good than bad out of WAGR. I'm blessed by friends around the world; friends who don't even speak my language, but with whom I can share a smile or some tears, and we totally understand each other. Our hearts are connected, so no words are required. I find that God shows his love for us so richly through our struggles with Evie's health; he provides in ways that I could never imagine.
|Family Fun in MN|
Although I just spoke of my wonderful WAGR family, I would say the second thing on my list of top blessings would be my immediate family and friends. Through the years I have felt surrounded by love, support, faith and encouragement. They have showered me with gifts, both tangible and intangible. I have friends and family who pray for me, and for my family. I have friends and family who call, send letters, write e-mails, and let us know that we are never far from their thoughts. I look around at a world of hurting people who may have never been told that they are loved; but in my life, I have been told repeatedly. I am so very thankful for that.
|Family fun in Boston|
At the tippy top of my thankfulness list is my husband. Once we were trekking through snowstorms to go to house parties in college, and years later we were trekking through snowstorms to take our daughter to chemotherapy appointments. It's amazing where God has taken us through our years together. We have grown closer still to one another the past few years as we worked through couple's Bible studies like Fireproof Your Marriage. People will take certain verses out of the Bible, several of them about marriage, and use them to humiliate Christians, when in reality, the verses, (when read as they were supposed to be, "as a whole") mean so much more, and are extremely insightful.
|Skillet Concert at Lifest 2013|
For example, I've come to realize that one of the curses of original sin is that marriage will be difficult!
Finally, the ultimate of all thanks goes to God. (Shocker, I know. I totally wasn't leading up to that at all...) I am amazed by the stories he writes for all of us. He is the most remarkable creator and director of all things. Just when I think that I have a GREAT plan, God comes along and really shows me up. I am here on earth to learn and demonstrate that God's will is perfect.
|Henna Tattoo |
in Key West