I also had to say "no" to some things and realize that getting healthy was more important than being a volunteer outside of my home. I cut out blogging for the most part, had to say "no" to some requests to take someone into Madison who I sometimes took grocery shopping, and I stopped packing for our move all together. I even scaled back my exercising!! I had to really prioritize what was necessary to get through this medical setback for me.
Did I get Evie's follow up appointments scheduled yet in Reno? No...that is apparently something that I'm meant to do later. Did I pack a bazillion boxes as I had been ? No...instead I realized that I needed to rest and conserve my energy for the time I needed to be with Evie. So, I put in my notice to leave work permanently this Friday so I could give myself "room to breathe".
So, sometimes, when the world feels like a heavy burden, we as parents need to say, "I can't do this; I must take care of that." We need to be okay with not being "superwoman" or "superman" for a while, because that's not what all of this is about.
Have you ever heard the story about how geese fly, and what happens when one is hurt or tired? You can read it here: The Goose Story . The leadership team for the International WAGR Syndrome Association knows this story well. We are all busy people who have all the other stuff going on in our lives besides "just WAGR". We understand that and we "honk" to one another when we need help.
It's hard, but I've learned to "honk" for help in my own personal life too. Do you need some help to stay aloft with the rest of the geese in your life? Do you feel like you need some time to drop to the back of the V-formation and ride on the "lifting power" of those in the front? Then HONK! The first time you "honk," you might feel awkward about taking the break; but you'll start to recognize those "honkable" times, and you'll start to see and identify the co-pilots in your life a lot easier. The others around you will learn more about you, and you'll learn more about them as you start to take turns helping to lead the gaggle of geese.
No, life doesn't stop for WAGR; but hopefully we will find the support we need which will help us coast through some of our roughest days.