Saturday, January 24, 2015

Her World, My Mystery

What is it like to live there?
Lying down and staring up,
Watching Full House or singing with K-Love, 
Rocking back and forth, 
Creating a rat's nest to brush out later with tears.

What is it like to live there?
Knowing enough, but not knowing enough,

Knowing you're different, not just unique; 
But very, very different from your friends.
Knowing that your health has never been good, 
And that this will never change.

What is it like to live there?
Trapped behind eyes that don't hide the light,
In a mind that struggles to find her senses;
The senses to make sense of it all,
In a body that struggles to run, jump, and play,
With a mouth that can't say for sure how you feel.

I want to know what it's like to live there, 
In your own world, in your own struggles, in your own thoughts.  
It is a mystery to me...a painful mystery I try to solve,
Taking one clue at a time, as they come, 
And piecing them together to be a better mother for you every day.

Written in response to Sunday Scribblings 2 Prompt:  lost in her own thoughts


  1. I've asked myself those questions so many times. It's a subject rarely discussed. Poignant and thought provoking.

    1. Thank you...I had written this and then scheduled it to post the next day...when I got up I thought, "Hmmm....I'm not sure I quite captured what I was trying to..." but then logged on to facebook and people were loving it; so I guess I did!

  2. I question I've pondered on and a subject rarely discussed.Poignant and thought provoking.

  3. How much more can a parent do than love? It probably is not possible for you to fully understand how Evie feels because of your own life's experiences which she doesn't know about. But you are there, you are her rock, she can rely on you because of your love.

    1. Thanks, Old's also nice to talk to other parents of kids with her syndrome, because when we all share our personal insight, it kind of sheds light on what we might be wondering about. Love our kids...

  4. What a touching piece...It must be so hard not to be able to go inside and see from her perspective...i think however that you must do a marvellous job at understanding your daughter...



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